Skye (9) in the middle with her older sister Michaela (who turned 12 yesterday) in the foreground and her little sister Alia (who turned 8 years old on 2 days ago) in the background (pic is from August 2005).
We brought Skye home last night!
We’ll go back in 10 days to take the stent out of her left kidney which we are hopeful will restore it to normal functioning. This should be an outpatient procedure and much less invasive than Tuesday’s procedures.
They will also do tests at that time to determine the level of left kidney functioning. Hopefully this will also address her hydronephrosis (enlarged kidney).
We should get the tests back on her thyroid issues in a few days. This may address weight gain, her thyroid enlargement, and her digestive issues.
Regarding her digestive issues, they gave us some medicine that she’ll be on for a year that will hopefully get her on the right track.
Biggest 2 questions in my mind:
- What do we do about about the deflux complications of a calcified deflux from the procedure in 2003 – i.e. will the calcification get worse?
- To what extent is her left kidney functioning?
Thank you everyone for your calls, cards, offers to help, actual help, emails, visits and especially prayers.
We are also deeply grateful for the expertise and care at Johns Hopkins Hospital in Baltimore. They really are unbelievable and there’s a reason that US News and World Report has rated them the #1 hospital in America for 17 years in a row.
And we are very happy to be home.
Pls pray for more light from our doctors and tests and and an actionable plan for Skye.
Pls pray for Alia and Michaela who experienced limited birthday celebrations this week due to all the events.
Pls pray for Beth to get some rest!
You all are the best!
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