Posted in Uncategorized on 27 February 2008|
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We received some bad news this morning. Our surgeon let us know that the test they did Monday for Skye’s left kidney indicated that its functioning was extremely compromised. Her right kidney is doing 96% of the work. And our doctor recommended no other intervention at this time since the stint that they placed in her left kidney on 12 February and was removed Monday precipitated no significant improvement of left kidney function.
The good news is that you can live to be 100 on one kidney and her right kidney is working fine. What’s also good is that Skye is in no pain at all and is back in school. We thank God for these blessings.
The bad news is that Skye is only 9 years old with only one working kidney (at least for now) and – more concerning – there is also calcification of the deflux on her right kidney as well. We do not know for certain that the deflux complication of calcification on her left kidney is what precipitated the loss of function, but it seems clear to me that it’s a possibility. I asked Dr. Mathews about monitoring this for the right kidney and he wants us to get it tested every 3 mos for at least a year so that we can monitor for this.
Dr. Mathews let Q-Med, the manufacturer of Deflux, know about the deflux complication and they’ve notified the Food and Drug Administration. We had heard of one other instance of this and today we learned that there is a grand total of three incidences of Deflux calcifying. I think this is just in the US where the FDA approved this procedure in 2001 (they’ve been doing this surgery for 15 years in Europe).
So we’re in uncharted territory here and we will speak to God about this and ask for his help. He made Skye and He loves her and He is good even when we don’t get it.
When you think of it, please ask God to protect Skye. She is such a precious little girl and our hearts are very sad at this turn of events. Please also pray for Beth, especially; she’s pretty discouraged. I should say that we are not “giving up” on the left kidney and are exploring with Skye’s surgeon the possibility of it starting to function. We know that sometimes kidneys do stop functioning temporarily.
Again, thanks to all of you for prayers, visits, cards, calls, emails, help, etc. I sincerely believe your prayers especially have made a difference.
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